2 months today since my surgery, it has gone pretty fast and I'm happy to say I feel pretty good. I've had a few dramas with eating, mainly my food getting 'stuck' after the first few mouthfuls and having to force myself to vomit, but I only seem to vomit saliva. Occasionally I will vomit a bit of food but only when I have eaten something quite heavy like rice or pasta, then the vomiting episode consists of a choking vomit, my face going red, being unable to breathe, my eyes watering and my nose running! Not pleasant but it doesn't last very long and after the episode I feel much better and can usually manage to eat the rest of my meal.
I've lost 9 kgs so far, I actually just recently lost 1.5 kgs in 5 days and that scared me because I was feeling pretty good and had no problems with eating, since then I have increased my portion size and am making myself eat more which is so hard when I don't feel hungry or have any desire to eat!!
Some days I feel nauseous all day and struggle to eat but then most days I am fine. Finding foods to eat is a bit of a struggle, I am getting a bit bored with food and am continually searching for something 'new' to try. I have noticed the last couple of days I have some pain in my lower intestine/bowel after I eat, could be connected to the fact that I have increased my portion size and am eating more. I have a Doctors appointment with my GP tomorrow so will discuss it with him then. I have also started taking a slow release Iron tablet every day and am hoping that it is helping. I will probably need to look at getting a B12 injection in the next couple of weeks, something I will also talk to my GP about tomorrow.
I generally have a little nap every day after lunch, some days I'm fine without it but find I get very tired about 6pm and struggle with dinner.
My hormones have been pretty messed up since my surgery and it has affected my menstrual cycle however things have seemed to settle down in the last couple of days. Life is pretty busy and back to normal I guess, busy with the kids and all their activities, housework, I even managed to go out for dinner with some school friends on the weekend (I didn't eat much but thoroughly enjoyed my meal and the company I was with), it was a great night and am looking forward to doing it again soon! This weekend I'm off to see Keith Urban in concert, can't wait it will be a great show!!!
My main concern is weight loss at the moment, I only have about 5 more kgs I can afford to lose so hopefully things settle down soon.
My next post with be at 6 months post surgery, unless anything happens in between now and then.

Hello Trudy
ReplyDeleteMy name is Simone and I live in Melbourne. I have found out earlier this year that I also have the CDH1 gene and am in process of planning my TG surgery for later this year. Reading your story has been for comforting so thanks! Best of luck to you with your continued recovery
Regards, Simone
Hi Simone, nice to meet you! I'm very happy to hear that I have 'helped' in some sort of way. When I found out I had the CDH1 gene, my family and I searched and searched for people with this same gene and eventually my sister stumbled across the NSFC website and we have connected with lots of people experiencing what we were going through/about to go through. If you have any questions anytime, message me through Facebook (if you are on Facebook). Take Care, Trudy.
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